Is there a Cure for Multiple Myeloma? | Norton Cancer Institute



Multiple Myeloma Resources

If you’ve been diagnosed with multiple myeloma, it’s important to have access to resources that can help you understand and manage your condition. Here are Everyday Health’s most recommended organizations, blogs, and websites providing the information and support you may need.

Organizations

Multiple Myeloma Research Foundation (MMRF) www.themmrf.org; 1-866-603-MMCT

Founded in 1998, the MMRF is a nonprofit organization that provides facts, information, and resources about multiple myeloma diagnosis and treatment. The MMRF invests in research and tracks patient recovery in the hopes of discovering a cure.

International Myeloma Foundation (IMF) www.myeloma.org; 800-452-2873

The goal of IMF is to improve the quality of life of myeloma patients while working toward prevention and a cure through research, education, support, and advocacy.

American Cancer Society (ACS) www.cancer.org; 800-227-2345

The American Cancer Society provides information related to the latest in statistics, causes, risk factors, symptoms, diagnosis, and treatment for multiple myeloma.

National Organization for Rare Disorders (NORD) www.rarediseases.org; 203-744-0100

Learn more about signs and symptoms, causes, affected populations, related disorders, standard treatments, therapies, and supporting resources here.

National Institutes of Health (NIH) www.rarediseases.info.nih.gov; 888-205-2311

The NIH’s Genetic and Rare Diseases Information Center offers a detailed overview of symptoms, causes, treatment, diagnosis, and prognosis, as well as information on organizations and the latest research on multiple myeloma. They also offer tips on how to find a specialist so you can get the help that you need.

Myeloma Central www.myelomacentral.com

Get a free Welcome Kit with treatment calendars, receive frequent emails with updates on research and treatment, and find a wealth of articles and information related to multiple myeloma.

Financial Assistance

Cancer Care www.cancercare.org; 866-552-6729

Cancer Care provides financial and copay assistance, as well as the option of having a professional oncology social worker find you additional resources. They also have an online database that helps you find doctors and other forms of assistance.

Multiple Myeloma Research Foundation (MMRF) www.themmrf.org; 866-603-MMCT

The MMRF has compiled a list of support groups and financial programs to help you find the assistance you need for multiple myeloma. The programs range from those that cover some of the costs of medication, treatments, and copays to those that provide education about insurance coverage.

PAN Foundation www.panfoundation.org; 866-316-7263.

Patient Access Network (PAN) Foundation is a nonprofit organization that seeks to help federally and commercially insured people with chronic or life-threatening diseases like multiple myeloma with some costs of their prescription medication.

Healthwell Foundation www.healthwellfoundation.org; 800-675-8416.

The Healthwell Foundation provides financial assistance to eligible individuals for coinsurance, copays, healthcare premiums, and deductibles for certain medication and therapies.

NeedyMeds www.needymeds.org; 800-503-6987

NeedyMeds is resource for those who can't afford medication or other healthcare expenses. You can find assistance for specific diseases and conditions, application assistance, state-sponsored programs, and Medicaid sites.

Coping, Advocacy, and Support

International Myeloma Foundation (IMF) www.myeloma.org

Choose from 150 myeloma support groups in the United States. You can search by your ZIP code to find a group in your area and connect with other myeloma survivors and caregivers.

Multiple Myeloma Research Foundation www.themmrf.org; 866-603-MMCT

Scroll through a directory to find a multiple myeloma support group near you.

Cancer Care www.cancercare.org; 800-813-HOPE, ext. 4673

Cancer Care offers free online, telephone, and face-to-face services for those with multiple myeloma and other cancers. Their services range from individual counseling to support in groups.

MyLifeLine www.mylifeline.org; 888-793-9355.

MyLifeLine provides a list of support groups, as well as other resources, like a caregiver toolkit, financial assistance, side effect management tips, and a cancer resources directory.

American Cancer Society (ACS) www.cancer.org

The ACS will connect you with free or low-cost local support groups in your area.

Facts and Statistics

Leukemia &LymphomaSociety lls.org

AmericanCancerSociety cancer.org

NationalInstituteofHealth cancer.gov

MedicationandTherapies

AccordingtotheNationalCancerInstitute,thefollowingdrugshavebeenapprovedbytheFDAtotreatmultiplemyeloma:

PatientandCommunityBlogs

InternationalMyelomaFoundation(IMF) www.myeloma.org

FindarangeofpatientstoriesoftheirjourneyswithmultiplemyelomaonIMF’swebsite.

PatientPower www.patientpower.com

YolandaBrunson-Sarrabo,authorofAnotherFaceofMultipleMyeloma givesherexperienceofthefirstmomentsofbeingdiagnosedwithmultiplemyeloma.

BlogforaCure www.blogforacure.com

Acompilationof29blogsofpersonalpatientstoriesandjourneysofhavingmultiplemyeloma.

NavigatingCare www.navigatingcare.com

Hereyou’llfind10multiplemyelomablogswrittenbypatients.

MyelomaBeacon www.myelomabeacon.org

Acolumndevotedtopatientssharingtheirexperienceswithmultiplemyeloma.Findcomfortinsupportinthejourneyofotherswithweeklyblogposts.

ClinicalTrials

MultipleMyelomaResearchFoundation www.themmrf.org; 866-603-MMCT

Search for clinical trials based on keywords, find information about treatment options, and learn about clinical trials.

NIH ClinicalTrials.gov www.clinicaltrials.gov

ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. Explore 285,128 research studies in all 50 states and in 203 countries.






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Date: 06.12.2018, 16:40 / Views: 94473